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Posts Tagged ‘elderly’


MY 94-year old father was released from hospice care today because he’s just doing too well to qualify for that designation. His life in the nursing home will continue as usual, only now there’s no extra nurse, aide or social worker checking in. I get it and I’m actually rather hopeful that the doctor is adhering to the rules of Medicare and the spirit behind those rules. Although nobody can predict how long my dad will actually live, they also can’t limit it to the 6 months required by the Feds. I’m hopeful because the news is filled with too many stories of Medicare and Medicaid fraud it worries me that the health care marketplace is fraught with tricks and loopholes to bleed money from the government and us taxpayers. It’s nice when I see the law adhered to.

So my father is off hospice but still stuck in the nursing home he hates. Now I’m talking about a gold star nursing home with amenities to match. Book clubs, sports groups, activities, musical concerts, religious services and beautiful grounds that he can see from his private, spacious room. He’s stuck because that’s how he sees it. He’s no longer able to walk to the parking lot, get in a car and drive home. And none of his kids will do it for him. He doesn’t participate in any of the activities other than services and the periodic entertainment.

He’s been there for more than a year and I really don’t think he hates it anymore. He’s adjusted, knows the people, enjoys some of the food and complies with the regimens. He’s clean, is well groomed, has gained weight and is the epitome of robustness for a 94-year old man who’s been disabled by a stroke 25 years ago. Left to his own devices, which he desperately yearns for, none of that would be true. It’s the rules and the regs that bother him the most. He feels like he’s in prison, and he’s right. He’s being held somewhere against his will and that’s the ultimate in lack of control, especially for a very controlling person who’s quite macho and has always been in charge.

He’s sad a lot and lonely and that makes us, his children, equally hurt for him. We can’t fix it. We’ve sent in a social worker and rabbi to see if they can help him adopt a different attitude. Sometimes it helps but only temporarily. We’ve explained how he requires the care of skilled people more regularly than he can receive at home. And how he’s actually less lonely than he was in his bedroom where he interacted with many fewer visitors and just his TV for entertainment.

My father thinks his daughters have betrayed him, that we’ve turned our backs on him now that he needs our help. That he financially and emotionally supported us as children and provided a comfortable livelihood so we could enjoy what we were provided. He is unable to consider different points of views outside himself. His heart won’t allow it and his pride won’t release. As he sees it, he is the rooster and we are the eggs and we need to do what he wants as he did when we were children.

That makes us sad too for we haven’t betrayed him. Quite the contrary. Each of us plays a role in my father’s life at the nursing home. One sister closely monitors his care there and takes care of his domestic needs. One overlooks his finances. The third sister researches the law, his business history and gives him feedback and the last cheers him up, makes him laugh and brings him her delectable dishes. He knows it, and doesn’t notice it. That’s just a given; we’re his daughters.

It’s a learning experience for us all. He has to accept life as it is and we have to live with the knowledge that we’re keeping him where he doesn’t want to be and doing our best for him in the background.

Sigh …

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We say yes, he insists no.  What’s a child to do?

Right now my 89 year old father is in a rehab unit hoping to re-gain the strength of his body.  His legs don’t work that well anymore, particularly his left leg that’s grown weaker in the 20 years following his stroke.  The same is true of his arms; the right does the lion’s share of work while the left hangs limp at his side.  He desperately wants to return home where he was about a month ago before this current crisis took place.  There he was able to move ever so slowly using his walker and also to perform the daily rituals of living.  Now he can’t get in or out of bed by himself, bathing and dressing himself is impossible and he requires the help of an aid to move even more slowly and unsteadily in his walker for yet shorter distances than before.  And yet he’s convinced himself that he’ll get strong enough to go home and continue life as before.  It doesn’t look promising, though he is improving.

The food there is good; we’ve tasted a bit of all his meals as they’re delivered.  He’s receiving excellent care, has a private room and is in a very cheerful, bright community of people with a similar cultural background as his.  He’s been accepted into their long term care household which is where we want him to live.  He refuses, complaining about the regimented lifestyle and business-like attitude of some of the nurses and aids.  They have schedules to adhere to regardless of whether he agrees.  He likens it to life in the military some 70 years ago and says he wouldn’t wish it on his worst enemy.

We’re in a stalemate.  Once his physical therapy is finished we’ll have to make a decision.  What do we use as our guide?  Our judgement, as his children, about what’s best for him?  Or his emotional insistence on the way he wants to live out the rest of his life?

Based on history, we think that if he goes home he’ll “fire” the aids after a short period of time because he thinks they’re no longer necessary.  It’s happened before.  He hates spending the money; he considers it wasteful.  He wants to die with his money intact “just in case.”  “Just in case” what?  we probe.  “I don’t know” is the answer.  He can’t grasp the idea that NOW is the” just in case” he’s been saving for.

Life at home consists of sitting solitary in a room and watching TV all day.  His only company is my sister when she returns from work and my other sister when she visits.  On many Thursdays he hobbles to his car and drives to meet his buddies for lunch at the nearby deli.  He shouldn’t, but he does.  I doubt he’ll be cleared by a doctor to continue driving.  He’s convinced we’re wrong.  He must keep his car.

When I was a kid I went to hebrew school and took piano lessons because my parents insisted they were beneficial.  I disagreed.  It didn’t matter.  I went and I practiced — for years.  And years.  And years.  Now, as an adult, I’m a richer person for the experiences.

He doesn’t see the analogy.  He sees himself as the parent who knows best.  We disagree.  Who wins?  And at what cost?

What do you say?  What would you do?

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Growing Old


Health

Health (Photo credit: 401K 2012)

It’s a bitch to get old and feeble.  None of us thinks about it while we’re busy with our lives managing careers, family, friends and the daily mundane chores of living.  Nobody anticipates the day when we can no longer take care of ourselves, relegating decisions about our life to others.

That rude awakening landed square between my eyes while now playing the role of parent to my elderly father.  He’s always been a ferociously independent, active man who supported a family of six, sent his kids to college and provided the religious education he considered to be important.  He ran a business and answered to himself about all matters.

As a renegade, my father felt rules were guidelines that he could follow or not.  He could run red lights if he determined there to be no traffic, but God forbid any of his kids do that if he’s a passenger in our cars.  If his customers were tardy on paying him, his bills could wait until cash flow improved.  Any imposed penalty for lateness didn’t apply to him because of his extenuating circumstances.

Now he sits in a wheel chair while his body defies his craving to walk and go and do.  Now he has to listen to us.  And his therapists.  And his doctors.  And eat food they want him to eat and drink liquids that are unappetizing.

Life is incredibly difficult for him these days and at 89 it’s damn near impossible to become a different man, a deferential man.

My heart aches for him and I wonder whether he will be me someday.

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